To date, IPPC has developed two tools to aid quality improvement in pediatric palliative care;

• Recommended Domains, Goals and Sample Quality Indicators (a draft consensus document)
  
• Pediatric Palliative Care Institutional Self-Assessment Tool (ISAT)

In order to access the quality improvement tools, you must register with IPPC. Registration ensures that IPPC will be able to contact you concerning any updates or revisions based on pilot testing currently in progress.

Recommended Domains, Goals and Sample Quality Indicators

This draft document recommends quality domains for family-centered pediatric palliative care along with related quality indicators. Six domains were identified spanning 9 goals and 41 quality indicators for determining progress toward the goals.

IPPC's Pediatric Palliative Care Institutional Self-Assessment Tool (ISAT)

Based on the analysis of domains, goals and quality indicators presented in the Domains document, IPPC co-investigators and EDC staff developed an institutional assessment tool to assist organizations in assessing their status on issues related to family-centered palliative care for children with life-threatening illnesses. The purpose of this instrument is to serve as a catalyst for discussion and planning.

The ISAT is divided into two components; a hospital administrative form and a unit level form.

The draft ISAT has undergone three phases of content validity refinement and is currently being field-tested in our seven participating hospital sites.

We encourage you to review and/or download these tools and to use them in your organization. Each document specifies how it should be cited if it is used in presentations or publications. We would like to hear from you about your experiences with these tools and any suggestions you have for improvement. Contact us via e-mail at ippc@edc.org, or visit our contact information page for more information.

Hospital Administrative Form

This component is designed to be filled out by a person in an administrative position in the hospital who is able to answer questions pertinent to hospital-wide issues and policies.

Unit Level Form

This component is designed to be filled out by a representative of each local unit to be surveyed within the hospital (i.e., NICU, PICU, Oncology, HemOnc).

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