Module 1: Engaging with Children and Families

ACTIVITY 3: SEMINAR Big Choices, Little Choices: Family-Centered Options for Children and Parents Description

Facilitator's Guide   Order the video

This seminar provides participants with a comprehensive understanding of the range of choices that can be made available to children and parents throughout the course of illness. Concrete options for integrating the perspectives of children and families are reviewed; existing constraints to the implementation of family-centered options are addressed. Participants explore their own institution's effectiveness in acknowledging and responding to the personal experience and interior life of seriously ill children.

Learning Objectives

Participants will be able to:

• Recognize the importance of empowering children and parents to make choices regarding day-to-day as well as long-term concerns regarding the child's treatment.
• Identify the types of choices and range of options that are available or could be implemented in your hospital to increase the voice of children and families in the organization and implementation of family-centered pediatric palliative care.
• Identify existing institutional constraints to the implementation of family-centered programs and policies, and discuss strategies for addressing these constraints.
• Explore the extent to which the child's experience of life-threatening illness and of the hospital culture is recognized and validated on a clinical and organizational level.

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